The Cancer Cachexia Network

Resources on Cancer

• Cancer Support Community

  • Patients and caregivers can call the toll-free Cancer Support Helpline 5 days a week at 888-793-9355 to speak with a trained oncology social worker who can help navigate the cancer experience. They also have an online chat option for those who prefer not to call. These professional navigators can provide specialized support and resources for those impacted by cachexia, including referrals to nutritional counseling free of cost. ​

  • The Caner Support Community also provide in-person support at their 196 brick and mortar locations worldwide: Find a location near you. ​

  • Cancer Support Community also has programming and resources available for pediatric cancer patients & their caregivers. CSC has partnered with NIH and NIMH to develop and test a distress screening tool for pediatric patients with chronic illness, including cancer, called Checking IN. Checking IN is a dyad screener that elicits feedback from the pediatric patient about their own distress and from the parent about how they perceive their child's distress. Checking IN is currently standard of care at NIH. For example, Atrium Health Levine's children screened over 1000 people last year using Checking IN  to ensure that pediatric cancer patients receive the support they need.​

  • Cancer Support Community has also designed a distress screening tool, referral, and support program for caregivers, which is CancerSupportSource - Caregiver. They have partnered with St. Jude's to evaluate the use of CSS-Caregiver to support parents of chronically ill children.

• Specific Cancer Support Groups

  • The Cholangiocarcinoma Foundation (CCF) - bile duct cancer

  • PANCAN - pancreatic cancer